Nom i cognoms / Name and surname
Afiliació / Affiliation
Programa de finançament europeu en que s’enmarca aquest projecte? / European funding programme in which this project is being carried out?
Marie Skłodowska-Curie Schemes
Títol del projecte / Project title
HELICAL: HEalth data LInkage for ClinicAL benefit
Número del projecte / Project number
Breu explicació del projecte / Brief explanation of your project
HEalth data LInkage for ClinicAL benefit is a training network comprising 17 academic and 9 non-academic/industry partners for early stage researchers in the field of Healthcare Data Linkage in the GDPR era. European researchers have made leading contributions to the large genomic, transcriptomic and clinical datasets from patients with chronic diseases. Advances in information science provide unprecedented opportunities for using these datasets to elucidate the complex biology of these disorders, its influence by environmental triggers, and to personalise their management.
Exploitation of these opportunities is limited by a shortage of researchers with the required informatics skills and knowledge of requisite data protection principles. HELICAL addresses this unmet need by developing a trans-sectoral and interdisciplinary programme with training in analysis of large datasets, using autoimmune vasculitis as a paradigm, as comprehensive biological and clinical datasets are already available.
The programme will be delivered through a partnership of Academic and Industry researchers with expertise in basic biomedical research, epidemiology, statistics, machine learning, health data governance and ethics.
HELICAL exploits recent advances in data science to link research datasets with longitudinal healthcare records, based on the robust ethical foundation required for linkage studies using near-patient data, to address key experimental questions.
Within HELICAL’s Work Package 1, focused on the environmental determinants of vasculitis, the ESR6, Alejandro Fontal, explores the role of environmental factors on the autoimmune response of vasculitis using extensive data linkage and time series analysis techniques.
Enllaç a la pàgina web del projecte / Link to your project website
Repte en que s’emmarca aquest projecte / Challenge within the framework of this project
1. Health, demographic change and wellbeing, 7. Secure societies – protecting freedom and security of Europe and its citizens